We participated in our annual JDRF Walk to Cure Diabetes yesterday. A beautiful sunny day with a perfect breeze….couldn’t have asked for better weather! KC and Firefly had a great time leading our team of over 30 walkers.
At the end we headed over to the Vendor booths to visit our Medtronic reps…sadly, they left before the event ended. But the Omnipod rep was there and caught the eyes of both KC and Firefly. They each tried on the pods on their arms (a site they never would try with their Minimeds) and were stunned by how easy it was. KC had said no to the pod in the beginning because she was afraid it was too big and bulky–but now she’s fan….she even wore the sample through a volleyball game, swimming and sleeping…she said she forgot it was there…
So here we go….
To Pod or Not to Pod?
- ease of insertion (both girls filled the reservoir, put the pod on and started the saline themselves)
- little to no discomfort during insertion
- reasonable start-up cost ($150 for the start kit)
- freedom to swim and still get insulin
- no tubes to get caught on door knobs and drawer pulls
- no tethered pump to fall out of pocket or off waistband
- the Artificial Pancreas Project clinical trials are using Omnipods
- uses Dexcom cgm not Medtronic
- CGM handheld device and Pod/BG handheld not integrated into one unit…must carry both
- we haven’t finished paying for our Minimed pump yet
- BG meter is Freestyle –uses different test strips. We already have Bayer meters and test strips, + One Touch meter and test strips…now a third type?
- and the biggie….no mySentry type product for Dexcom
- unknown supply cost
The pros are tremendous. And I am leaning toward letting her use the Pod during the summer months if we get insurance approval. Checking whether or not it is possible to use the Medtronic cgm/mySentry without the Medtronic pump just to keep our nights worryfree (relatively speaking that is)–I think it is possible because the mySentry receives the glucose info from the sensor transmitter….really need to find this out.
I know there are people who say “Just get a baby monitor so you can hear the Dexcom alarms”–well, first off the mySentry is so much more than just an alarm. It provides the glucose reading from the CGM, + information about how much insulin is left, time remaining before sensor change, battery life, and trends. At any time during the night I can look at it and see the same information that is showing on KC’s pump. And I also find it hard to put a baby monitor in the room of an almost teenager…it seems like an invasion of privacy. As I say again and again, I want her to live as normal of a life as possible and I shouldn’t have to use a baby monitor.
Why can’t any one pump manufacturer come up with the entire package? Here’s what we (KC and I) want from a pump system:
- a tubeless pump that can get wet
- and is combined with cgm in ONE UNIT
- one handheld BG meter/cgm/pump operator device with
- a remote monitor (with battery back-up)
In this day and age, is this so much to ask for? It’s not like I’m asking for a cure or anything? Oh year, that’s right, while you are at it let’s get that done ASAP!
UPDATE###The Medtronic Guardian cgm will not work with the mySentry–once again a “brilliant” engineer didn’t think “gee, if we have two cgm systems then we should make both work with the mySentry.” To clarify, Medtronic has the Guardian cgm which is like the Dexcom in that it has it’s own handheld device for operation and doesn’t speak to the pump; the Paradigm Revel cgm system is operated by and works with/speaks to the pump.
So I guess the decision has been made for us….no podding until a remote monitor/pod (aka patch pump) system is created.