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Clearing out the Clutter….or How to Maintain Hope in the Midst of all the Hype?

Today, I am spring cleaning…mopping floors, fluffing pillows etc.

And I am feeling the need to clear my head as well. Yesterday, there was a lot of hype on Facebook about a breakthrough for Type 1 that would/could lead to a cure. I had a feeling that it was regarding a news story I heard a week or so ago about islet transplantation. And it was. Great news that progress is being made in improving the ability to transplant islet cells. I am all in favor of research.

But…

transplantation is not a cure. It is like saying that “chemo and radiation are a cure for cancer.” They aren’t. They kill the cancer cells and may or may not prevent you from getting cancer again. A cure would be that cancer, as a disease could be prevented from happening in the first place.

We need to start looking at all the “diabetes news” clutter out there and sorting it into appropriate boxes: management, treatment, cure

  • Management: any new technology for pumps, cgms,ways to deliver insulin (which includes the Artificial Pancreas), meters, test strips including “apps” and software that help with the day to day job of managing the disease

 

  • Treatment: Insulin

yep, that’s it…insulin

Okay, I’ll throw pancreas transplant in here and islet transplant as well

 

  • Cure:

 

 

 

Hmmm,  the Cure box is empty.  Surprise, Surprise (sarcasm intended).

But there are researchers working on a cure.  Dr. Faustman’s study of reversing Type 1 diabetes is promising. or maybe the answer will be  Cardiff University’s Type 1 vaccine.  And there is the gene therapy study being done at the University of Barcelona.  These are just of few of the research projects that are working toward a CURE…not management, not treatment, but at CURE that will eradicate Type 1 and prevent future generations from getting it.

Yes, I love new management products and always want to be one of the first to try them out to help make my daughter’s management of this disease easier UNTIL a cure…not instead of a cure.

And I know that we need lots of options for management, treatment and cures; not every option will work for every person with Type 1.

Whew!  Ok.  One more thing before I get back to my physical spring cleaning.  Find a Type 1 charity that shares your priorities and do everything you can to help the process.  Some of us will have one pet foundation; others will work for as many as physically possible.  Just get out there and take an active part if helping find better management tools, more treatment options and as many potential cures as possible.  We can help by raising awareness about T1.  We can help by talking to our pump/cgm manufacturers and letting them know what will really make daily life better.  We can help by participating in clinical trials. And, I know you don’t want to hear it, but we can help by raising money.   ( Sorry Nike for stealing this but)  “Just Do It”  whatever you can do to help.

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About kcandcompany

Mother of two...one with food allergy and one with Type 1 diabetes.

4 responses »

  1. Love this :0) couldn’t have said it better myself! It was like you were living inside my head last night…and surprisingly enough, spring cleaning here too. (Who ever invented spring cleaning needs to get beat! I start on one tiny organizing/cleaning project and it explodes into all areas).

    Reply
  2. Great article and thanks so much for providing all the other bodies of research in such an organized way! Would you be so kind as to sign & share this Change.org petition asking for funding for the Faustman Lab? http://chn.ge/16kwUf7

    Goodness knows, the sooner it gets funded, the closer we will be to a REAL type 1 cure!

    Reply

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