“Recently various petitions have been circulating the Diabetes Online Community, so today let’s pretend to write our own. Tell us who you would write the petition to – a person, an organization, even an object (animate or inanimate) – get creative!! What are you trying to change and what have you experienced that makes you want this change? ”
We, the Undersigned, respectfully submit to all manufacturers of insulin pump and continuous glucose monitoring systems and glucose meters/test strips, the following petition.
As you continue to develop new technology and improve upon existing, we ask that you consider more than the medical impact of the product on the lives of the end users and their caregivers. It seems as if each company is living in a bubble and not really looking at what life is like for a child with Type 1 diabetes or a parent of a child with Type 1. Some companies are all about touch screens and color displays…others appear stodgy in comparison. In reality, what we want are products that make our lives a bit easier and many products are falling short. For example, we have great pumps without integrated cgms. We have cgms with barely audible alarms. In the past year, one pump/cgm company came up with a caregiver monitor—this should have been part of the plan from day one. Today, another cgm manufacturer is working toward a caregiver monitor….more than a year after the other company released theirs. Should such a monitor even have to be an add-on? Absolutely not for a disease associated primarily with children! Help us fight the insurance companies to get coverage of these items. Fight the FDA to have them packaged together.
The insulin delivery technology is impressive….but the lack of a pump/cgm system that has it all has many of us frustrated. And yes, we know about the Artificial Pancreas Project….but our fear is that even that system will not keep the end user in mind…form and function can go hand in hand and should. We challenge your engineers to think about what the customer wants in addition to what we need. And what about a more universal approach to supplies? I know generating revenue is a huge factor as to the proprietary style of test strips, insertion sets etc…..but I have one word for all marketing and engineering people to remember….”Betamax.” Yep, the best video quality out there at the time, but Sony didn’t want to share…..and betamax disappeared long before VHS and Sony learned it’s lesson as well.
D-moms of the World