Wego Health’s Challenge of the day is to come up with working titles for books based on health condiditions.
So here they are…
My five working titles
1. Got Milk? Go Away: Managing Food Allergies in School
2. Not Your Grandma’s Diabetes
3. “Should She Be Eating That?” and Other Stupid Things People Say About Kids With Type 1 Diabetes
4. Apologies To My Math Teachers: I Do Use Algebra in Real Life
Confessions of A Carb Counting/Insulin Giving/Blood Sugar Checking Swagging Mom
5. It’s Just A Number
The Highs and Lows of Type 1 Diabetes
If the genie in a bottle was giving out worry-free day passes, what day would I chose? wow……let me think on that….WOW….one day, huh?….WOW
Only one day? Prom, graduation, college, starting career, marriage, birth of my grandchild…..only one day? Can’t do it…maybe I’m selfish, but I want all those days to be worry-free like they are for parents who don’t have kids with chronic health issues like food allergies or Type 1 diabetes.
But I’d settle for 4 years worry-free for each of my two wonderful children. The four years of college….let them go to the school of their dreams, no matter how far from home that may be. And let them be safe from harm.
If I could have the ear of the engineering/marketing people at a major diabetes medical equipment manufacturer, I would let them know what a dream gizmo for the management of diabetes would look like to me.
First, I am tired of “one offs”–some great ideas but they work independently…not integrating or coordinating with any other products on the market. For example, iBGStar meter…love that you can turn your iPhone into a meter….but why limited to iPhone users only….some of us can’t afford such pricey phones. Why not create a meter that can be used with any smartphone? And the iBGStar doesn’t talk to any pump.
T1’s and their caregivers need less “stuff” to lug around…
Medtronic users: pump with tubes (pump is also the device to bolus/set basals etc), cgm w/transmitter, meter that links to pump, lancing device, strips, lancets
Other tube pumps (Animas, T-slim): pump with tubes, remote to bolus/set basals (which is also the meter for Animas Ping), lancing device, strips, lancets, additional meter for T Slim (no linking meter) These pumps currently do not have cgms that are integrated, so cgm with transmitter will also need an additional receiver to carry with you.
Omnipod: pod pump, pdm which is meter + remote for pump operation, lancing device, strips, lancets –no current integrated cgm so cgm with transmitter will also need an additional receiver to carry with you.
For those who don’t pump: insulin vial and syringe or flexpen, bg meter, lancing device, strips, lancets and maybe a cgm system
So here it is, what I want –The Dream Diabetes Managment Machine
A waterproof tubeless pump
that has accurate cgm and pump contained in the one pod
and insulin and glucagon (oh, Artificial Pancreas we long for your approval)
with the ability to operate pump from any smartphone
and use any smartphone as a bg meter–with test strips of choice
and allows multiple users to be notified by alarm when bg goes high or low (controls to be set by owner)
That sounds about right!
But what I really want is a CURE!
Starting with the most important–
1. Insulin (I know, obviously…but sadly too true!)
2. Continuous Glucose Sensor (okay I’ll throw the insulin pump in with this as they are integrated) and the mySentry (Medtronic’s remote monitor for caregivers)
3. Internet–for connecting to the DOC, looking up carb count/food allergens
4. Juicy Juice–those little boxes come in mighty handy treating nighttime lows
5. calculator–when I am trying to calculate a correction for a high in the middle of the night
6. Bayer ContourNext Link meter….takes much less blood than the OneTouch Ultra Link used + it lights up so I can use it at night without a flashlight!
7. The Bayer Contour 2 “pricker” aka lancing device….this has been KC’s pricker of choice…we covet them!
8. storage/organizers: everything has a place and everything in it’s place where D-supplies are concerned
9. KC’s Spi-belt that she wears for PE and sports…keeps that pump out of the way and safe.
10. String cheese–KC’s fave “free”snack.