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Tag Archives: international travel with Type 1

Navigating the D O C…..

Navigating the D O C…..

Recently, I have connected with a number of families of newly diagnosed T1 kiddos. Each newby breaks my heart….it’s like the scab is ripped off again. I remember that feeling of being overwhelmed. Late nights, surfing the internet looking for something….

And I found a wonderful world of amazing families who are facing the same struggles we face. Families that know just how it feels to be battling the beast that is Type 1 diabetes. Each wonderful blog lists a roll of blogs they follow or suggest, which is really helpful. But I’ve come to realize that it can be hard to find the right blog. While I love reading blogs of the d-mamas with the little ones, and we do share so many of the same emotions, we aren’t at the same stages of development. For example, I have no idea how to potty train a toddler using an insulin pump and a d-mama of a toddler doesn’t know how teen hormones can affect bg. So I sat down and started listing some of my favorites and categorized them. I hope this will help people find blogs they can connect with or that can address specific areas of concern.  If you have suggestions of blogs to add, please let me know!

Parenting children 10 and under with Type 1

The Princess and The Pump   mom of daughter dx’d 2009 age 3

Virginia Beach Duck Family  mom of daughter dx’d 2010 age 4 1/2

D-Mom Blog:  The Sweet Life With A Diabetic Child mom of daughter dx’d 2008 at age 3

Bigfoot Child Have Diabetes mom of son dx’d 2011 at age 8

Arden’s Day dad of daughter dx’d 2006 at 2 years old

Parenting pre-teens/Teens with Type 1

Despite Diabetes  mom of daughter dx’d 1997 at age 6

Don’t Call Me Sugar parents of daughter dx’d 2010 at age 10

KC & Company mom of daughter dx’d 2010 at age 10

Parenting/Living with Multiple T1’s

Our Diabetic Life  mom of 4 sons 3 of whom are T1 dx’d at ages 8 months, 5 1/2 years, and 2 1/2 years old (now 14, 10, and 8 respectively)

Daddybetes  dad of daughter dx’d 1997 at 18 months old; his wife is a T1 as is her father, grandfather and brother.

Parenting Diabetic Kids  parents of a daughter dx’d 2005 at age 4 and son, dx’d in 2007 at age 6

D-Dads

Diabetes Dad  dad of daughter dx’d in 1992 at 2 years old and son, dx’d 2009 at age 13

Daddybetes  dad of daughter dx’d 1997 at 18 months old; his wife is a T1 as is her father, grandfather and brother.

Arden’s Day dad of daughter dx’d 2006 at 2 years old

Adult living with Type 1

Bitter-sweet diabetes  dx 1979 at age 11

Six Until Me dx 1986 at age 6

Teens/Young Adult T1 Bloggers:

Big Heart, Bigger Choices Follow college student Taylor (dx’d 1997) as she pursues a nursing degree

Something Sweet and Special

Family with Diabetes Alert Dog  Journey into Type  1

Jewelry designed by Type 1 Rachel, Proceeds go to JDRF. Rachel’s Cure By Design

PJ’s For A Cure

Mom of two T1’s designs and sells a pump pouches at My Own Style Pack

Great Etsy store and Type 1 Tuesday blog by a D-mama of a daughter dx’d 2011 at age 5  One Happy Mama

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2012 : Another Year Bites the Dust!

Can’t believe that it is 2013 already. Life is flying by these days. #1 son is halfway through sophomore year of high school and KC is halfway through 7th grade. 2013 will bring two teenagers, an additional licensed driver (we hope) and who knows what else!

2012 started off with “What I Wish I Knew A Year Ago”.

 The first year after DX taught us so much. Year Two was more predictable in many ways and we are still learning!

Next came “Oh My Sentry.”

This was without a doubt the best thing I spent money on in 2012. Actually being able to sleep and knowing that an alarm will go off IF I am needed.–getting more sleep definitely helped me cope!

January 2012 ended with “Milestones” marking the latest milestones of parenting a teen and preteen + dealing with food allergies, Type 1 diabetes and growing up.

And in February, sadly “Another reminder of the “new” normal.”

A routine eye exam reminds me that nothing is routine when dealing with Type 1 diabetes.

Valentine’s Day marked one month using the mySentry:

and now almost a year later, I know I couldn’t live without it.  It’s not perfect, but it is a component of that any pump/cgm system should come with as standard equipment.  A remote monitor for the caregiver is a no-brainer!

February also brought KC’s first sleepover invitation since she started on the insulin pump.  This topic is one so many d-mamas are talking about.  Should we let them?  What age should we let them?  It is “The Great Sleepover Debate.”

And if you haven’t seen MTV’s True Life:  I have Diabetes, I recommend you do!   My reaction was very emotional!

March was busy and left no time for blogging but I started up again in April by reexaming my fears as a parent:

“There is no living thing that is not afraid when it faces danger. The true courage is in facing danger when you are afraid.” L. FRANK BAUM, The Wonderful Wizard of Oz

Sleepless nights are something all D-parents are familiar with and I was no exception in April and May. Found myself frustrated because the perfect pump/cgm/monitor system does not exist.  Is it too much to ask for the medical device companies to actually take into account what the end-user of the product really wants?  

I also participated in my first Diabetes Blog Week with posts on “Find A Friend,” “One Great Thing,” “One Thing to Improve,” “Fantasy Diabetes Device,” “What They Should Know,” “Saturday Snapshots,” and “Diabetes Hero.

The summer months found me pondering “Beach Bound With A Pumper:  What is a Mother to do?” And then sharing the lessons we learned in “Back from The Beach.

In July, I shared my birthday wish.   And August brought examples of our “normal” life:  summer camp and grocery shopping.  And before I knew it, it was back to school time.

October got me thinking about the difficulties of managing diabetes from a health care standpoint and then it was November–Diabetes Awareness Month!  30 days of raising awareness–30 days of thinking about diabetes on a larger scale.

Sadly, in December, the US was stunned by the deaths of innocent children at Sandy Hook Elementary School.  This event brought to mind how “lives can change in an instant.

And here we are, in the first days of 2013 with endless possibilities ahead….

just remember to

Keep Calm and Carry On!

Back from the Beach–lessons learned about travel with T1 kid

Down by the lazy river….

Home at last….ahhhhhhh

All and all our trip to the Bahamas went well but not without a few kinks (fortunately, not the insulin pump tube kind!)

First let me say that our local TSA agents were great (after the initial cranky one who quickly passed us off to her higher-ups).  Our hometown is a friendly one and so were our TSA agents. I explained that KC couldn’t go through the body scanner due to her insulin pump and cgm (not taking any chances with those babies!) and that I didn’t want her to have to take her shoes off.  According to the agents, children under 12 don’t need to take shoes off anyway. In order for us to opt out of the scanner (no wands available at our airport) and proceed to pat down, the supervisor needed to be called .  It was 4:30 am (6 am flight) and the agents were a little gleeful to have to wake up their usually grumpy boss!  We were quickly told that he waived the need for the pat down. All she would need would be an examination of the residue on her hands after touching her pump and checking the residue on her shoes.   They hand checked our insulated bag with insulin and let us through with snacks, juice boxes etc. They all profusely apologized for our wait–to which I repeated “that’s why we got here early!”    One agent thanked me for having done my research and knowing exactly what procedures would be taking place.  I offered my documents (doctor’s letter, Medtronic info, TSA letter) but didn’t need to pull them out of my bag.  The rest of the trip went smoothly as did entry into the Bahamas.

KC’s BG numbers were all over the place–as I expected they would be.  We had agreed in advance that she would go without her CGM from the first morning until the last night.  I really missed having that information available but never more so than at lunch on day two.  After her food arrived, KC pulled out her meter only to discover that her strip container was empty.  We were at a restaurant that was a 20 minute walk from our room….

Time to SWAG!  If we’d had her CGM, she could have bolused off her sensor glucose reading….but no such luck!  So we just covered the carbs and figured we’d fix later.  After lunch, the rest of the family went back to the water park and I hustled to the room to get the strips.

I made a decision give her insulin injections by shot for breakfast and lunch on days we would be at the water park.  I wanted to make sure she got all her bolus doses in ….unplugging the pump means some bolus amounts aren’t given.  She plugged back in at meals and received basal insulin during those times. Worked pretty well.

Our difficult times were at night.  She dropped to 48 at 11 pm–thank goodness we were still up.  With no cgm, we wouldn’t have been alerted and she would have slept through it.  She also ran high some nights….so I didn’t get a whole lot of sleep!  Really wish there was a way to temporarily disconnect the cgm like you can the pump.

She had a great time and that is the most important thing.

Our experience with TSA on our return trip was different, but not bad.  I was directed to let the agent at screening know about the T1…before I could say anything to her, she spotted our water bottle and told me it wasn’t allowed into the gate.  As soon as I mentioned type 1 diabetes, the bottle was put back in our bag. KC got a mild pat down.  I was waiting for my shoes and didn’t have the chance to ask them not to take hers off (she’s 5 ‘7 1/2″  and doesn’t look 12).  This time they just looked at her feet. No residue check on hands or pump.  Also, these agents didn’t open the insulin bag.

Final note: didn’t use the Aquapac but did keep the pump in the Pelican case when KC wasn’t wearing it.

So my advice is:  be prepared, be firm, but be pleasant.  The agents treated us well both at home and in the Bahamas.  Still sad that airline travel has changed so much, but a good attitude and doing your research will make it easier for all!