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Tag Archives: Type 1 children with diabetes mySentry

#HAMWC Day 8: If Diabetes were an animal it would be….

wego day 8

If Type 1 diabetes were an animal, which one would it be?

 

white swan

 

“The Swan: The epitome of grace and beauty, the swan is one of the last animals we’d imagine to be anything other than elegant. Tranquil ponds and romantic scenes wouldn’t be complete without a pair of white swans floating peacefully along. When they put their heads together, their long curved necks form a heart, making them all the more symbolic of love. These birds are lovely. Just look here for proof. There’s nothing I could possibly say to make you think otherwise, right?

Wrong! Swans are prone to aggression and very territorial. Just ask this unlucky bride who upset the wrong bird. Though I don’t believe swans are responsible for any human deaths yet, they have caused alarm to those canoeing through their territory. Not only do they attack by flying at perceived threats at full speed and biting them, they’ll also try to drown you if given the chance: “They are known to fly up over and try to keep something underwater if they perceive it as threat.” “(thanks to http://voices.yahoo.com/cant-touch-ten-cute-but-dangerous-animals-5625262.html for the description)

 

My reasons for choosing the swan?  Like the swan, children with Type 1 are beautiful. They handle their disease with grace and dignity. On the surface, all seems well.  But inside is an aggressive disease that is always trying to stake its claim.  Sometimes, diabetes strikes high,  flying at the body with full speed and other times, the body will be forced down and held low….and then out of the blue, the calm, graceful beauty will be back again.

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Navigating the D O C…..

Navigating the D O C…..

Recently, I have connected with a number of families of newly diagnosed T1 kiddos. Each newby breaks my heart….it’s like the scab is ripped off again. I remember that feeling of being overwhelmed. Late nights, surfing the internet looking for something….

And I found a wonderful world of amazing families who are facing the same struggles we face. Families that know just how it feels to be battling the beast that is Type 1 diabetes. Each wonderful blog lists a roll of blogs they follow or suggest, which is really helpful. But I’ve come to realize that it can be hard to find the right blog. While I love reading blogs of the d-mamas with the little ones, and we do share so many of the same emotions, we aren’t at the same stages of development. For example, I have no idea how to potty train a toddler using an insulin pump and a d-mama of a toddler doesn’t know how teen hormones can affect bg. So I sat down and started listing some of my favorites and categorized them. I hope this will help people find blogs they can connect with or that can address specific areas of concern.  If you have suggestions of blogs to add, please let me know!

Parenting children 10 and under with Type 1

The Princess and The Pump   mom of daughter dx’d 2009 age 3

Virginia Beach Duck Family  mom of daughter dx’d 2010 age 4 1/2

D-Mom Blog:  The Sweet Life With A Diabetic Child mom of daughter dx’d 2008 at age 3

Bigfoot Child Have Diabetes mom of son dx’d 2011 at age 8

Arden’s Day dad of daughter dx’d 2006 at 2 years old

Parenting pre-teens/Teens with Type 1

Despite Diabetes  mom of daughter dx’d 1997 at age 6

Don’t Call Me Sugar parents of daughter dx’d 2010 at age 10

KC & Company mom of daughter dx’d 2010 at age 10

Parenting/Living with Multiple T1’s

Our Diabetic Life  mom of 4 sons 3 of whom are T1 dx’d at ages 8 months, 5 1/2 years, and 2 1/2 years old (now 14, 10, and 8 respectively)

Daddybetes  dad of daughter dx’d 1997 at 18 months old; his wife is a T1 as is her father, grandfather and brother.

Parenting Diabetic Kids  parents of a daughter dx’d 2005 at age 4 and son, dx’d in 2007 at age 6

D-Dads

Diabetes Dad  dad of daughter dx’d in 1992 at 2 years old and son, dx’d 2009 at age 13

Daddybetes  dad of daughter dx’d 1997 at 18 months old; his wife is a T1 as is her father, grandfather and brother.

Arden’s Day dad of daughter dx’d 2006 at 2 years old

Adult living with Type 1

Bitter-sweet diabetes  dx 1979 at age 11

Six Until Me dx 1986 at age 6

Teens/Young Adult T1 Bloggers:

Big Heart, Bigger Choices Follow college student Taylor (dx’d 1997) as she pursues a nursing degree

Something Sweet and Special

Family with Diabetes Alert Dog  Journey into Type  1

Jewelry designed by Type 1 Rachel, Proceeds go to JDRF. Rachel’s Cure By Design

PJ’s For A Cure

Mom of two T1’s designs and sells a pump pouches at My Own Style Pack

Great Etsy store and Type 1 Tuesday blog by a D-mama of a daughter dx’d 2011 at age 5  One Happy Mama

Diabetes Blog Week Day #1: Find A Friend

Posted on

“Great balls of fire. Don’t bother me anymore, and don’t call me sugar.” – Scarlett O’Hara in Gone With the Wind

Welcome to the 3rd Annual Diabetes Blog Week (May 14-20, 2012)! Little did I know as I was reading blogs  at this time last year, that I would join the ranks of the bloggers!   But here I am….

The first topic of the week is “Find A Friend”–it is about introducing the DOC to a new or little-known blog. As soon as I heard the topic, I knew which blog to share with you.  But before I do, here’s the backstory:

On April 26, 2011 I was up late due to KC’s high/low blood sugar (sound familiar?)  Only 4 months into managing the beast, I was searching for inspiration, enlightenment, help….I stumbled across a blog about a 10 year old girl who was diagnosed on Dec. 31, 2010.  It caught my eye because not only was that date was 11 days after KC’s dx, but KC was also 10 at her DX.  The connections continued throughout the blog.  Lucy, the T1 in the blog, was on vacation in Boone, NC for New Year’s when she got sick–one year earlier we were in Boone for New Year’s and I could envision myself in her mother’s shoes.  Then it turns out that Lucy and her family live in Richmond, Va where I lived until I was 7.  So I felt compelled to reach out and that was the start of a special friendship.  Lucy’s mom, Mary, is my go-to-girl when I need someone who understands.  Having daughters so close in age and so close to DX date give us a instant bond that has only grown stronger over the past year.

Mary and her husband, Mike, manage to bring humor to the daily struggle of dealing with Type 1.  Check out Don’t Call Me Sugar–you’ll laugh at Mike’s description of  carb counting and dinner time in “Dinner, Now a Three Ring Circus” and you’ll get teary-eyed as you read Mary’s memories of Lucy’s diagnosis.  Leave them comments encouraging them to write more!

P.S.  Mary is the one who gave me the “Keep Calm and Carry On” ornament pictured in my “Five Christmas Questions” post–she was out shopping, saw the ornament and thought of me. 🙂  It is now a treasured keepsake that reminds me of the good that has come out of KC’s diagnosis!

The Great Sleepover Debate

Do you or don’t you? Should I or shouldn’t I? What if?

Tonight is KC’s first slumber party since she went on the pump last May. She hasn’t been invited to one since the week after her pump start. In that case, I chose to let her attend the evening festivities but picked her up before bedtime. And haven’t had to face that question again until this week.

I’ve said yes. I know there are other parents who don’t agree with this decision but we each have to look at our children as individuals not just as CWD. In KC’s favor, she’s extremely conscientious about managing her T1. We had a long talk about my rules for letting her do this, which include the fact that she must text me with her BG at dinner and at bedtime. She knows that if her BG starts to go high and doesn’t respond to correction, then she’ll have to come home early. She knows that she needs to rely on her friends for help and can’t be afraid to ask for it. She knows that she needs to speak up about measuring her milk and her syrup at breakfast.

In a couple of weeks, she will be 12 years old. At 12, I had been babysitting for a year, and was able to make dinner and bake without assistance from my parents. Yes, she is a child with a chronic disease, but she is also a tween who needs to be independent and not forbidden from participating in ordinary activities.

I recently watched MTV’s True Life “I have Diabetes”   I hated it.  (I’ll probably rant more on that in another post) Hated seeing what happens to some CWD when they are no longer under their parents’ supervision. Especially disturbing was the young college student who drinks heavily even though he is causing permanent damage to his body.  I wonder if this isn’t a form of rebellion–just like any teen whose parents are overly strict, T1 or not, who gets a taste of freedom and goes wild.  I don’t want KC to feel like she missed out on being a “normal” kid.  I don’t want her chasing the thrill.  I need to treat her just as I do her non-T1 brother.

Yes, there are special considerations.  Yes, contingency plans need to be made.  Yes, I will worry the entire night.

But

I have made sure she will be in the best possible hands.  Her friend’s dad is a family practice doctor.  I am sending KC with an emergency bag containing everything she could possible need.

We have pre-planned her dinner carbs.  The girls will be going to Ruby Tuesday’s for dinner and we took the time to preview the menu and store carb counts on KC’s phone.

And KC asked if she could take the mySentry with her….she wants it near her so it will wake her up if her pump alarms go off.

I always go back to “what is my purpose as her mother”:  to give her the guidance to learn to make good decisions; to help her grow to be a responsible person so she will be able to live on her own.

In essence, the same purpose as any mother.

T1 is a major part of our lives and we can’t escape it, but it isn’t everything.